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EURORDIS Multi-Stakeholder Symposium on Improving Patients’ Access to Rare Disease Therapies


  • 3 Rue Gineste Bruxelles, Bruxelles, 1210 Belgium (map)

Attend to take part in discussions with policy makers, clinicians, pharmaceutical industry representatives and fellow patient advocates on how to improve patients’ access to rare disease medicines. Views expressed by participants at the Symposium will go towards producing a roadmap document setting out practical solutions. This document will be broadly disseminated to European and national institutions ahead of the May 2019 European parliamentary elections. 


Meer info op de website.